Only those with fibromyalgia will truly understand the struggle of fighting for clarity through the opaque Fibro-fog. Earlier that day, Sarah had felt the weight of the fog heavier than ever. It clouded her mind, turning even the simplest tasks into near-impossible challenges. Yet, amid the suffocating fog, a small act of kindness broke through, like a ray of sunlight piercing through stormy clouds. A little girl, with a teddy bear named Furry, had reminded Sarah that even in the heart of her struggle, there were still moments of peace, of grace. Now, as she lay in bed that night, she clung tightly to that memory, letting its warmth soothe her aching body and weary soul.
Later that evening, as the fog lifted just enough to let her catch her breath, Sarah found herself smiling—actually smiling—at the memory of that little girl and her bear. It had been so long since she’d laughed like that, and it felt like relief, like coming up for air after holding her breath for too long. The laugh wasn’t long, but it left behind a feeling of warmth, like a small ray of light cutting through a cloudy day.
She glanced at the teddy bear sitting quietly on the nightstand. "Well, Mr. Furry," she said softly, a hint of a smile tugging at her lips, "you’ve done more for me today than I ever expected." The bear, of course, said nothing, but in its quiet presence, she found comfort. It wasn’t just a stuffed toy anymore—it became a small anchor in her overwhelming storm, reminding her that even on the hardest days, there were still moments that could spark warmth and connection. A tiny cotton-stuffed bear now held the weight of so much more, symbolizing a world beyond her pain—a world where laughter could still slip through, where kindness still existed, where there was more to life than this constant battle with her own body.
As she lay down, resting her head on the pillow, the ache in her muscles still lingering in the distance, she noticed the fog wasn’t entirely gone. But tonight, something felt different. Maybe it was the child’s sweet act of kindness, or the fleeting moment of laughter breaking through her haze. Or maybe, just maybe, Mr. Furry really did have some magic after all. Either way, for the first time in what felt like ages, the fog didn’t weigh her down as heavily.
The days that followed blended together, a mix of good moments and bad ones. The fog stayed, as it always did, playing its cruel games. More than once, Sarah found herself standing in the kitchen, staring blankly at the cabinets, trying to remember why she had even walked in there. Or worse, her words would drift away mid-sentence, slipping from her mind like smoke. "Come on, Fog," she muttered under her breath one afternoon, as she found the remote control nestled between the milk and eggs in the fridge. "I didn’t sign up for a scavenger hunt today."
"Mama?" her child asked one evening, wide eyes full of concern. "What were you saying?"
"I… I was saying something, wasn’t I?" she forced a laugh, trying to make light of it. But deep down, frustration bubbled up like a heavy weight, pressing down on her chest. It wasn’t just about the lost words; it was about the pieces of herself the fog seemed to steal. Piece by piece, it chipped away at her identity, her confidence, her role as a mother.
Her husband was kind, patient even, but he didn’t fully understand. How could he? How could anyone who wasn’t trapped in this unrelenting cycle of pain and forgetfulness truly understand? The hardest part was, Sarah didn’t want him—or anyone—to see how much it hurt. She had to be strong, especially for her children. They needed her to be their rock, and she couldn’t let the fog steal that too.
But some days, the weight of it all was too much to bear. She’d sit at the edge of her bed, her body aching as though her bones were made of glass, scared that one more step would shatter her. Too exhausted to cry, she simply sat, numb. She wanted to scream at the pain, but where would she even begin? How do you fight something invisible, something that takes so much but hides in the shadows, unnoticed by the world?
Sarah knew she couldn’t escape it. The pain, the fog—they were part of her now. But maybe she didn’t have to run from it. Maybe, just maybe, she could hold onto those small pockets of light—the laughter, the kindness, the love her family still gave her so freely. Perhaps that would be enough to carry her through the darkest days. Because what choice did she have? She was a mother, and mothers didn’t get to give up. No matter how tired, how broken she felt, she had to keep going. For her kids. For her family. And maybe, just maybe, for herself.
Still, Sarah found ways to cope. Humor became her shield, and sticky notes, her lifeline. Little reminders dotted the house—on the fridge, beside the bed, in the bathroom. Simple notes like "Keys on the table, not in the fridge" or "Don’t forget your phone!" became her way of navigating the chaos. She knew some might find it silly, but this was how she kept order in a world that so often felt out of control. Too many times she’d start something, only to forget within seconds what she was even doing. "Come on, Sarah," she’d mutter to herself, embarrassed when anyone caught her talking to the empty air.
The days blurred together, a constant mix of fog and fleeting clarity. The fog robbed her of words, of thoughts, and yet, there were still moments—moments of light that reminded her she was more than this illness. More than the pain, the fatigue, the forgetfulness.
In her quiet moments, Sarah allowed herself the grace to simply be. To not push so hard. To laugh when things seemed overwhelming because, sometimes, laughter was the only defense she had left. It was her way of rebelling against the fog, a way of reclaiming the moments the pain tried to steal from her.
That night, as Sarah lay down, her body heavy with exhaustion, the fog still lurked at the edges of her mind. She wasn’t sure if it would ever leave, but tonight, she held onto the memory of that little girl, the joy in her skipping, the way her laughter had broken through.
Tears slipped quietly down her cheek, not just for the life she once knew, but for the future she had dreamed of—the future she feared her children would never fully know. Would they remember her like this? Fragile, tired, always struggling against a battle she never asked for?
To Be Continued…
Hi Sarah,
I read the preview for part three of this story and I'm intrigued to know where it will go. You are a good writer. ;-) Sadly I may not be able to read anymore as I have my own financial challenges right now and won't be able to sign up for a paid subscription.
So I wanted to take this opportunity to ask...
What was going on in Sarah's life when fibro started?
Could the fog be protecting her from something?
What would happen if she made friends with the fog and asked to know its purpose?
I offer these questions as something to contemplate. You don't have to answer them. But feel free to message me if ever you want to explore this experience of fibro and what it means for you. And I look forward to reading more of your free articles.
I'm sorry to hear of the additional challenges that Hurricane Milton has brought into your life. I can empathise. In perhaps a less dramatic way, life continues to challenge me more each day, at a time when I would dearly love to feel settled and get some rest.
I have my own mantras: "Surrender" and "What if this had been designed for my benefit? What then?"
All the best,
Rob