Discussion about this post

User's avatar
Robert Butler's avatar

It's certainly true that living with fibromyalgia - or any chronic illness - can adversely affect mental and emotional well-being. The reverse is also true - unresolved emotional trauma (no matter how small it may seem) can either be the cause or trigger for the onset of conditions like fibromyalgia.

Within the fatigue, the fog and the exhaustion I feel a deep sense of sadness and grief. These emotions were not caused by fibro - in some respects they ARE fibro (for me at least). If I didn't have these deep feelings, I probably wouldn't have got fibro. And so I have had to look more deeply and ask myself, "What does this sadness want to say? If the grief had a voice, what would it say?"

Many highly sensitive people end up with some form of chronic pain because they struggle to cope in a seemingly harsh and uncaring world, because they feel so deeply and don't understand how other people can apparently waltz through life unaffected by what is happening around them and in the wider world.

Expand full comment
Kez's avatar

This completely resonates with me but be because people don't understand what Fibromyalgia is and because it's so difficult to explain i end up trying to avoid it completely. Sometimes i even lie simply because it's easier. Arthritis is my go too because people understand that. They get it. And they don't ask endless questions and i don't have to endlessly explain. A task in itself that i find exhausting and to be honest boring and repetitive. And the thing is, i do look robust and healthy like many with our illness so i end up feeling like i have to descibe it all to justify the fact that i don't work and i don't 'join in' with social gatherings and activities. It's such an isolating illness but sometimes that can makes it easier to cope with. I don't have to explain myself or feel guilty (which is often) because people look at me sideways with scepticism and question marks. The fibro fog just makes it all the more complicated as anyone with Fibromyalgia knows. And you're description of depression and self doubt and loneliness is spot on. Not being able to join in and not even wanting too takes it's toll and i have lost sense of the real me. It's like somehow I'm standing behind someone else while they take over my life and i can only hope that one day i can push my way back in front of this imposter and show the world who i used to be. Still, its comforting to know I'm not alone with this even though i would never wish this on anyone else. But you show that the constant battle going on in my head isn't just me going mad but actually quite normal for someone in constant relentless pain. Thankyou so much for saying, explaining and telling us your experience with Fibro.

Expand full comment
5 more comments...

No posts