Living with fibromyalgia can feel like an invisible battle. On the outside, you might look fine, but inside, you’re dealing with constant pain, fatigue, and exhaustion that never really go away. I feel like we often overlook, though, is the impact it has on your mental health.
For many, managing fibromyalgia isn’t just about dealing with physical pain. It’s about handling the emotional toll that comes along with it. If you’re reading this and feeling overwhelmed, know that you’re not alone because I know it’s tough. The connection between fibromyalgia and mental health is very real, and many of us are facing this challenge every day.
The Emotional Weight of Chronic Pain
Chronic pain doesn’t just affect your body; it affects your mind too. It’s exhausting to live in a body that feels like it’s always in pain, and when that pain flares up unexpectedly, it can make even simple plans feel impossible. The result? Frustration, helplessness, and even anger can start to build.
It’s common for people with fibromyalgia to experience depression and anxiety—and honestly, who wouldn’t when faced with constant discomfort? Some days, just getting out of bed feels like an accomplishment, while on other days, it feels like the weight of everything is just too much. You might feel isolated, misunderstood, or start doubting your worth. Trust me we’ve all been there.
If any of this sounds familiar, I want you to know it’s okay to feel this way. You’re not weak, and you’re not alone in feeling overwhelmed. You’re dealing with something incredibly tough, and it’s completely normal for it to take a toll on your emotions.
Dealing with Fibro Fog
As you’ve all been reading, well I hope you’re reading, my short story series, “A Journey Through The Fog”, explores how Fibro Fog can make a person feel and the impact it has on us battling fibromyalgia and other illnesses
Along with the physical pain, there’s also "fibro fog"—those moments when it feels like your brain just isn’t working the way it should. Forgetting things, losing track of conversations, or having trouble focusing can be frustrating and embarrassing. It can make you question your abilities or feel like you’re not yourself anymore.
But I want you to remember: fibro fog doesn’t mean you’re losing it or that you’re any less capable. It’s a symptom of fibromyalgia, and it happens to so many people. Your brain is tired, just like your body, and it’s doing its best to cope.
The Stigma of an Invisible Illness
One of the hardest parts of fibromyalgia is that it’s invisible. People can’t see your pain, so they might not understand what you’re going through. Sometimes, they might even question if you’re exaggerating or if it’s "all in your head." This can make you feel even more alone, adding to the emotional burden.
Advocating for yourself is important, but it’s also exhausting. Surrounding yourself with people who try to understand, even if they don’t fully "get" it, can make a world of difference. Whether it’s friends, family, or an online community, having people who support you can ease the mental strain.
Coping with the Mental Health Impact of Fibromyalgia
So, what can you do? First, be kind to yourself. Living with fibromyalgia is hard, and it’s okay to admit that. You don’t have to be strong all the time. It’s okay to take breaks, to rest when you need to, and to feel all the emotions that come with this journey.
Therapy can be a huge help, whether it’s talking to someone who understands chronic illness or practicing mindfulness and relaxation techniques. Sometimes just having someone listen to what you're going through can make a big difference. If you’re dealing with depression or anxiety, medications might also help, and there’s no shame in exploring what works for you.
Taking care of your mental health is just as important as managing the physical side of fibromyalgia. If that means taking time for yourself, asking for help, or even just giving yourself permission to cry, that’s okay. You deserve that compassion.
You’re Not Alone in This
Fibromyalgia is tough—physically and mentally—but you are not defined by your illness. It’s okay to feel tired, frustrated, and even scared sometimes. But you don’t have to face this struggle by yourself. There are so many people out there who understand what you’re going through, and it’s okay to lean on them.
Remember, your feelings are valid. Your pain is real. And you are not alone.
It's certainly true that living with fibromyalgia - or any chronic illness - can adversely affect mental and emotional well-being. The reverse is also true - unresolved emotional trauma (no matter how small it may seem) can either be the cause or trigger for the onset of conditions like fibromyalgia.
Within the fatigue, the fog and the exhaustion I feel a deep sense of sadness and grief. These emotions were not caused by fibro - in some respects they ARE fibro (for me at least). If I didn't have these deep feelings, I probably wouldn't have got fibro. And so I have had to look more deeply and ask myself, "What does this sadness want to say? If the grief had a voice, what would it say?"
Many highly sensitive people end up with some form of chronic pain because they struggle to cope in a seemingly harsh and uncaring world, because they feel so deeply and don't understand how other people can apparently waltz through life unaffected by what is happening around them and in the wider world.
This completely resonates with me but be because people don't understand what Fibromyalgia is and because it's so difficult to explain i end up trying to avoid it completely. Sometimes i even lie simply because it's easier. Arthritis is my go too because people understand that. They get it. And they don't ask endless questions and i don't have to endlessly explain. A task in itself that i find exhausting and to be honest boring and repetitive. And the thing is, i do look robust and healthy like many with our illness so i end up feeling like i have to descibe it all to justify the fact that i don't work and i don't 'join in' with social gatherings and activities. It's such an isolating illness but sometimes that can makes it easier to cope with. I don't have to explain myself or feel guilty (which is often) because people look at me sideways with scepticism and question marks. The fibro fog just makes it all the more complicated as anyone with Fibromyalgia knows. And you're description of depression and self doubt and loneliness is spot on. Not being able to join in and not even wanting too takes it's toll and i have lost sense of the real me. It's like somehow I'm standing behind someone else while they take over my life and i can only hope that one day i can push my way back in front of this imposter and show the world who i used to be. Still, its comforting to know I'm not alone with this even though i would never wish this on anyone else. But you show that the constant battle going on in my head isn't just me going mad but actually quite normal for someone in constant relentless pain. Thankyou so much for saying, explaining and telling us your experience with Fibro.