I truly appreciate your kind words and the fact that you even considered supporting me means so much. Please know that you should never feel like you have to be a paid subscriber. I apologize if it came across that way. Your presence here, reading and connecting, is more than enough. If my message resonated with you, that’s what matters most. It helps me knowing that I am not alone in this battle. I try my best to write from the heart and not shy away from the truth. Sometimes telling others about my bad days, and struggles helps bring ease to my mind. I’m grateful you’re here.
First, I just want to say thank you for your comment. A rush of emotions overtook me as I read it. I felt like you were in my head, putting words to my thoughts, lol.
That feeling of being hijacked, of waking up hopeful only to be met with exhaustion, I know it all too well. The way fibro steals time, memories, and relationships while we keep pushing just to exist. And the brain fog? That moment of staring at paperwork, watching thoughts vanish, I’ve been there more times than I can count. It’s isolating, and explaining it feels impossible.
But reading your message made me feel less alone, less misunderstood, and that’s rare. Your words resonated deeply, and I can’t thank you enough for sharing them with me. It means more than I can express.
Please know that I see you, I appreciate you, and I’m so grateful to be in this fight with people like you. I promise I won’t stop, but I’ll take breaks, and I hope you will too.
Okay, so I just cried reading that because I've never read anyone put what it feels like into words that coinside with what I feel. I've lost friends, jobs, even family cause fibro lives it's own life inside my body. I feel hijacked every day. On good days,I feel like I can accomplish the things I've wanted to do my whole life and then I wake up the next morning, eager to get going and feel like Artax sinking in the mud.
I just wanted you to know, that I felt EVERY word you wrote and it's truly nice to hear what it honestly feels like instead of a generic medical term. I'll be in the middle of handling customer paperwork and realize I've been staring at the paper for twenty seconds cause everything I was writing was lost to the winds. I'm the middle of it I forget it's fibro and I make excuses for it. Not because I really need to but because explaining it to people is hard. I don't look like I have a disability, so it's not real; until my meds wear off or I've had to exert to much energy.
There's no way anyone can truly understand unless they experience it but I'm glad there's people talking about it. In real terms, so, like you said, we don't feel alone but also so loved ones can understand. Cause it's hard to explain when you've only got one spoon left and your brain had deserted your body that's also feeling every fiber of a nerve that's on fire.
So, Thank You! I really needed to read this today :) You're incredible, don't stop. But please take breaks as needed :)
Hello Angela,
I truly appreciate your kind words and the fact that you even considered supporting me means so much. Please know that you should never feel like you have to be a paid subscriber. I apologize if it came across that way. Your presence here, reading and connecting, is more than enough. If my message resonated with you, that’s what matters most. It helps me knowing that I am not alone in this battle. I try my best to write from the heart and not shy away from the truth. Sometimes telling others about my bad days, and struggles helps bring ease to my mind. I’m grateful you’re here.
With gratitude,
Sarah
Hello Susan,
First, I just want to say thank you for your comment. A rush of emotions overtook me as I read it. I felt like you were in my head, putting words to my thoughts, lol.
That feeling of being hijacked, of waking up hopeful only to be met with exhaustion, I know it all too well. The way fibro steals time, memories, and relationships while we keep pushing just to exist. And the brain fog? That moment of staring at paperwork, watching thoughts vanish, I’ve been there more times than I can count. It’s isolating, and explaining it feels impossible.
But reading your message made me feel less alone, less misunderstood, and that’s rare. Your words resonated deeply, and I can’t thank you enough for sharing them with me. It means more than I can express.
Please know that I see you, I appreciate you, and I’m so grateful to be in this fight with people like you. I promise I won’t stop, but I’ll take breaks, and I hope you will too.
With love and gratitude,
Sarah
Okay, so I just cried reading that because I've never read anyone put what it feels like into words that coinside with what I feel. I've lost friends, jobs, even family cause fibro lives it's own life inside my body. I feel hijacked every day. On good days,I feel like I can accomplish the things I've wanted to do my whole life and then I wake up the next morning, eager to get going and feel like Artax sinking in the mud.
I just wanted you to know, that I felt EVERY word you wrote and it's truly nice to hear what it honestly feels like instead of a generic medical term. I'll be in the middle of handling customer paperwork and realize I've been staring at the paper for twenty seconds cause everything I was writing was lost to the winds. I'm the middle of it I forget it's fibro and I make excuses for it. Not because I really need to but because explaining it to people is hard. I don't look like I have a disability, so it's not real; until my meds wear off or I've had to exert to much energy.
There's no way anyone can truly understand unless they experience it but I'm glad there's people talking about it. In real terms, so, like you said, we don't feel alone but also so loved ones can understand. Cause it's hard to explain when you've only got one spoon left and your brain had deserted your body that's also feeling every fiber of a nerve that's on fire.
So, Thank You! I really needed to read this today :) You're incredible, don't stop. But please take breaks as needed :)
Thank you for your words! Financially I cannot support you right now but if and when the day comes that changes, I will be happy to.