6 Comments
User's avatar
Robert Butler's avatar

A beautifully written article and, sadly, one that I can relate to all too easily. Are you familiar with the work of Rue Hass and Dr Nancy Selfridge? They have done a lot of work with people who have fibro and, in one of Rue's books, she mentions a common personality trait among many people who have fibro - namely, feeling like we have to keep soldiering on and tough it out.

But what happens when we don't keep battling and soldiering on? Our old world begins to fall apart, and that can be very difficult to deal with. But maybe letting go is like a forest fire - it seems like a destructive process at first, but eventually it creates space for new growth.

It may seem a bit cliched to talk of caterpillars and butterflies, but that's how living with fibro often feels to me: the death of my old self and the birth of the new.

Also, this might sound a bit woo-woo to some people, but it seems like a number of people had flare-ups of symptoms during the last full moon.

Anyway, thanks for taking the time to write this. I appreciate it. Take care.

Expand full comment
This Fibro Chick's avatar

Thank you so much for your kind words and for sharing this insight. I haven't read Rue Hass or Dr. Nancy Selfridge's work yet, but what you’ve mentioned resonates deeply. I’ll check them out, sounds interesting. The idea of soldiering on, only to realize that letting go might be necessary for new growth, is powerful. It’s such a challenging process, but your analogy of a forest fire really strikes a chord—what seems destructive can actually pave the way for renewal.

I completely understand the caterpillar and butterfly comparison. Living with fibro does feel like a transformation, where we have to mourn the loss of our old selves while nurturing who we’re becoming. As for the flare-ups during the full moon, that doesn’t sound woo-woo at all to me. There’s still so much we don’t understand about how our bodies respond to the world around us. This definitely something worth looking into.

I really appreciate your thoughtful response and the resources you’ve shared. Take care of yourself as well.

Expand full comment
The Chronic Pain Diaries's avatar

“you’ve survived every bad day so far”

This. 👏 Honestly this has always been what gets me through those flare ups, massive reminder of how strong and resilient we are.

Expand full comment
This Fibro Chick's avatar

Absolutely! Thank you for this, 💪 It's such a powerful reminder that no matter how tough it gets, we've made it through every single bad day. That resilience is something to be proud of, and it’s what keeps us going through those challenging flare-ups. We’re stronger than we realize! One thing I try to remind myself if, I’m never alone! There’s a whole community supporting me.

Expand full comment
Dani Matos's avatar

I wish I could hug you and say tomorrow will be a better day, but only someone who lives with fibro knows how mischievous it can be (specially the actual hug). What i'm trying to do right now is find something that makes me feel better in the most miserable days. Eventually the rainbows and sunshine moments we so much diseve will be here by any moment. Maybe not tomorrow, but i'm not losing hope.

Expand full comment
This Fibro Chick's avatar

Your words truly resonate with me. It's comforting to know someone else understands how unpredictable Fibromyalgia can be, even with something as simple as a hug. Finding those small moments of relief is so important. And you're right—we can't lose hope. I need to remember this. Thank you for reminding me to hold on. The rainbows and sunshine will come, even if they take their time. Sending you strength and warmth as we both wait for those brighter days.

Expand full comment